Bone Marrow Transplant – Day 0

Today is my last day at home.  It is Wednesday August 25 and it is early in the morning.  The sun is not up yet.  I snuck out of bed and have been quietly getting things ready for the day and my quietest activity is writing a blog post, so here I am.

Tomorrow I will check into the hospital at 9:30 AM and the first order of business is to have a central line placed.  Some people have called it a chicken foot, others call it udders, the nurses all just call it a line.  It is a rubber hose that hangs out of my chest and has three valves on the exposed end.  The other end goes right into a main artery so drugs can be fast tracked into my system.  When that is complete, I will be sent up to the 8th floor to check into my home for the next few weeks and will start getting the hi-dose chemo sometime late tomorrow.

I have been receiving many questions about visiting the hospital.  Here is the “official” response.  There are no particular visiting hours, so if you want to visit me, you can do it at any time.  However, there are exceptions.  8E (Eighth floor, E Wing), is specifically the bone marrow transplant neighborhood of the hospital.  All the patients in that section of the hospital are lacking fully functioning immune systems.  So, it is asked that if you feel even the slightest bit of a cold, flu, infection, whatever, that you don’t visit until you have recovered.  Even if you have allergies that are causing you to cough or sneeze, me and my new neighbors don’t want little sneezy microbes going airborne.  For this reason, standard procedure on 8E is that everyone entering the floor gets a glob of hand sanitizer and a little paper mask at the nurses desk.  The mask is not to protect you, it is to keep your personal germs from entering the common airspace.

This does not mean that everyone should stay away though.  I would like visitors and will need the break from the monotony of being in that bland environment.  So you can definitely come and visit.  I would like it if you could call or email me or Angela either the day before you would like to visit or the day of if possible and just check on the “current conditions.”  We will let you know if I am feeling well enough for visitors.

So here are the guidelines for visiting:

  1. Call or email me or Angela either the day of, or day before you want to visit to make sure I am okay
  2. Don’t come if you are not feeling well, sick, sneezing or have any condition that might possibly spread
  3. Children under 12 years old are not allowed on 8E
  4. No live plants or flowers are allowed on 8E

I will write more as things get under way

17 thoughts on “Bone Marrow Transplant – Day 0

  1. Sarah Andresen says:

    I will be thinking about you over the next couple of weeks!! You are a stong person and I know that you will beat this cancer!

  2. Michelle Raia says:

    Enjoy your day today! We will be praying for this next phase of the treatment. You are almost to the finish line! We love you!! Chris, Michelle & Isabella

    • Thank you Raia’s. I still plan on being well enough to visit you in November when we pass through Tampa. That will be my first trip away from town after this whole escapade.

  3. amber guzzardo says:

    Dan, just wanted you to know that I am thinking about you and sending good thoughts and energy your way. From reading your blogs I am amazed and inspired by your energy, your outlook, and your support system. Amber

    • Hi Amber,
      So good to hear from you. I am really happy to know you are reading the blog. You are right, my support system is pretty amazing. So many wonderful people are continuously wishing me well that I know this will all work. How is your knee? Are you back to being you? One of my goals that I am keeping in my mind to stay positive and motivated is a trip to Park City in February. This will be with the whole family and I plan to have Dominic clicking into some skis this year.

  4. Jimena says:

    Dan, I am thinking of you and praying that everything goes according to plan.
    More above all this, I hope you stay strong and positive. If you ever feel frightened, sad, overwhelmed, enraged, in the course of the next weeks,think about all of us that care so much for you and allow yourself to feel the love and the positive energy we send your way. Think about all your family and friends from all over the US and the world -we are all joining forces and rooting for you and keeping our fingers crossed. Keep us updated ok?
    Ji

    • You got it Jimena. I think about my friends and family very frequently and even when I am not writing, I frequently go back and re-read the positive messages here on the blog and in Facebook and those words always help me feel better. I know tomorrow is going to be tough based on my reactions today. It is getting harder to eat anything, and that is a signal that the toxins are taking over.

    • Hi Andrea,
      How good to hear from you. Thank you for checking in on me. I love knowing that so many people are out there wishing the best for me. That really truly brings me strength.

  5. Chris Slezak says:

    Good luck Dan. I enjoyed our conversation the other night. Remember to take it as it comes (little hurdels) and you will do just fine. I’ll check in in a few days.

  6. Laura Gearhart says:

    Hey brother! I’ve been thinking about you a lot lately anticipating the next few weeks. I wish we didn’t live so far apart. You’ve come a long way baby and your wild ride is almost done! I wish with all my heart that the weeks ahead pass quickly and smoothly for you. I have a button pinned to my purse that says, “My brother is my hero.” It’s because you are. You’ve taken what’s been dealt to you and made the best of it. Your upbeat spirit and optimism is an inspiration to everyone who knows you. I love the idea of you using your positive outlook to help others and their families cope with similar situations. Yet another example of why you are a hero in my eyes. Talk to you soon! Love, Laura

  7. Karen says:

    Diddo with Laura and all of the above. This next month will pass by quickly and each day will bring a brighter and stronger vision. You will leap each hurdle (probably curse many of them) and move on. Remember that elephant…one bite at a time or I like the pac man idea….crunch, crunch, crunch…until the bad boy is gone! How great to have a hero like Chris on your side (we love you Chris!)! We love you and will talk with you soon…..Hugs and Kisses, Aunt Karen

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